Behind the scars, c’est un très beau projet photographique que dévoile l’artiste londonienne Sophie Mayanne,à travers ces clichés et ces histoires, elle aide les personnes photographiées à s’accepter, à se montrer et surtout à s’aimer.
The last few months have been extremely challenging as the condition of my skin as deteriorated massively. From 18 months old when I was diagnosed with epidermolysis bullosa to earlier this year I was able to live an almost normal life despite my skin, it was easy to hide and easy to manage. But earlier this year it started getting rapidly worse and I am now able to do less of the things I once could. My confidence and self esteem is almost non existent most of the time. So much of my day is spent managing my skin or being in pain from it. But now more than ever I need to remind myself that I am still the same old me. I am still beautiful and this condition that I will be lumbered with for the rest of my life, does not define me as a person. It will always be a huge part of my life but i will never let me take over my life. EB is so rare that there is so little awareness for it and in a lot of cases it is life threatening so I’m posting this not only for me but for everyone suffering. Because of the lack of awareness, the funding towards trials and research is so limited that I probably will never access to a cure, as much as that upsets me, I just hope that future children will get access to more treatment and a possible cure. If anyone cares enough to find out more about EB, google search « Debra eb ». I’d also like to thank @sophiemayanne for taking these photos that I am surprisingly so happy with. I felt so comfortable during this shoot and that is not usually the case during shoots, so thank you!!
#behindthescars Chloe “I started self harming when I was 13 and have struggled with it ever since. The issue with self harming is it gets progressively worse and you end up doing more and more damage to yourself than you think is possible when you first start. It truly is an addiction and you get to a point where surgeons tell you that plastic surgery can’t fix the appearance of the scars, so the only thing you can do is love your scars so much that all the negative connections that come along with self harm slowly disappear – along with all the pain attached to the scars. My scars tell my story, and I’m never going to let anyone else’s thoughts or opinions change that. “ @_chl.o shot on Huawei P10 @huaweimobileuk for @dazed #RevealTheRealYou
#behindthescars Sam “I played with a hand gun at age 14 and it gave me a lifetime in a wheelchair. But despite what you might think, I’ve never found a reason to be victimised by my condition. My spiritual and physical scars made me grow stronger, empowered. I wanted to be a tennis player, so I became a tennis player. I wanted to be a model, and guess what… I am a model. As a model of diversity, I work in the fashion industry representing people that have limitations but are not limited. They love, they fight, they win, they lose. They are real and my story helps them to see how beautiful and meaningful they are. All scars included.” @samabullock
#behindthescars Bintu “When I was young, I pulled a cup of hot boiling tea off the counter. As a result, it burnt my left shoulder down to my left breast and stomach. My scar has been with me since I was 11 months old – it is all I know, I don’t even remember my body without a scar. I have my confident days where I say « It’s just a scar”. I’m sure everyone has a scar. I’ve definitely had my bad days, but only when I meet a new face and they stare at it in disgust. It makes me think OMG is there something on my body? And then I remember “the burn” lol. I wear this scar because it is a part of me. It’s just a scar. » @missmurad
#behindthescars Isabella « Today I am a little angry at the world. I’m angry that it’s been 2 years and 2 days and I still don’t feel complete. I have been cut up and then stitched and stapled, but today I don’t feel whole. I’m angry that my memories and dreams of what happened blend together with the present. It’s 2 years and 2 days and today I don’t feel okay. But I will. » @fauxnandes
#BehindTheScars Barbara « In 2014 I was diagnosed with angiosarcoma of the breast, a rare and aggressive cancer. Three surgeries and two chemotherapy treatments later these are the scars I bear. My recent operation was an innovative surgery which involved removal of my sternum and four ribs, which were replaced by surgical cement, muscle from my back and a skin graft. It took me a long time to finally embrace my scars. They document my journey and the courage and strength I did not think I had. Recently I was told the cancer had returned. Surprisingly I feel at peace. » @babschilds
#behindthescars Felicity « My body is, and has always been scattered with freckles and moles. Too many to keep track of. Last year I noticed one had changed and seemed darker and more misshapen than before. I saw several doctors, all of whom said it was nothing to worry about – but I pushed to get tested and was diagnosed with a malignant melanoma insitu. Luckily this is the very early stage of skin cancer, so it was caught with plenty of time. It was treated by removing 5mm of skin from the area. At the time I just felt so relieved. However, this summer I again noticed a mole looked darker and misshapen. This time round I was more anxious, stressed and very scared. Again I was diagnosed with a malignant melanoma. This time it was further along in its growth, meaning I had to have 1cm of skin removed. It’s very rare to be diagnosed twice at such a young age, and hearing the world “melanoma” and “cancer” really shook me. I’m so grateful that my skin cancer was caught early – the scars are a small price to pay. They will always be a reminder of how lucky I am, and how short life can potentially be. I would rather have a body adorned with scars, and the hope of a future – than an early death and a flawless corpse.”
#behindthescars Yasmin “My tumour changed my life in so many ways. A life changing operation to remove the tumour, the size of a grapefruit gave me self acceptance on a level that was truly unconditional. In 2012 I was diagnosed with non Hodgkin’s lymphoma. Cancer wasn’t an issue, what was was the discovery of a huge tumour. It was benign, but sizeable. Attached to my liver, a bunch of nerves and my main artery to my leg. Five hours of surgery, a deflated hung, my diaphragm put on halt, a bypass with my insides out on a table. My fear going into surgery was the long term affects and how my body would recover. Will my boyfriend still love me, will he still find me attractive, will any man find me acceptable to look at? The truth was, it taught me to love myself hard, without compromise. Inside and out, there was a journey of total acceptance. My amazing body had not failed me yet, so who was I to not love it back for keeping me alive? The message is simple – we are provided with a beautiful vessel to carry our soul. It works so hard to support us daily – the love I have for my body is insurmountable. It allows me to be my glorious self – I am a very lucky girl.” @missyasminibrahim
#behindthescars Mercy “My scars are from a fire related to domestic abuse. I got burnt at the age of 29, and it’s been a difficult journey coming to terms with it. The comfort I take from my scars is they make me who I am today. I call them my most precious, and expensive piece of jewellery I own. I have survived and if having my picture taken, and exposing my scars can help anyone else then that’s good for me!.”
#behindthescars Marcos “On the 14th February 17 I started to feel a pressure inside my chest, after drinking about 6/7 gin and tonics, so I thought it was related to that. A while after, the pressure was increasing and I felt like I had been shot in the heart. I fell to the floor, and when I woke up I was in the hospital, without the middle of my lung! I’ve been smoking since I was 11 years old, so apparently this was the reason my lungs didn’t work properly. 3 months later, I was driving and it happened again. Thank Jesus I could stop at the time. When I woke up, I had had the other lung operated on as well. So now I have a part of both of my lungs missing, and I’m still alive.”
> article de Loïse DEWILDEMAN